Upcoming Virutal events
Join a Facebook Live event on January 20th, 2023 at 4:00pm EST to hear Jose’s Journey With XLH. She will share her experience as a parent caring for two sons who are also living with XLH. During this event, Josie will talk about her challenges and how finding support has turned her into the confident advocate she is today.
Join a webinar on January 31st, 2023 at 7:00pm EST on Rare Bone Diseases in Canada: The Adult Perspective with Keynote Speaker: Dr. Durhane Wong-Rieger, President and CEO of Canadian Organization for Rare Disorders, brought to you by Rare Bones Canada.