Are you an XLH patient or caregiver living in Canada?
We are looking to connect people with XLH of all ages, and their families from across Canada, to share experiences with the disease and to give support in navigating Canada’s unique health care system.
As new treatments for XLH become available, provincial governments and private insurers will be looking for input from Canadian XLH patients on the burden of the disease. Such information will be used as part of the decision making process in regards to allowing new treatments to become available to Canadians with XLH.
If you are interested in helping our cause and connecting with other Canadians with XLH or their caregivers, we invite you to
join us on our private Facebook group!