Follow us on our social media platforms below to stay up to date on XLH related news in Canada!
If you are interested in helping our cause or connecting with others in Canada, join our private Facebook group linked at the bottom of this page.

Join our Private Facebook Group

Are you an XLH patient or caregiver living in Canada?


We are looking to connect people with XLH of all ages, and their families from across Canada, to share experiences with the disease and to give support in navigating Canada’s unique health care system.

As new treatments for XLH become available, provincial governments and private insurers will be looking for input from Canadian XLH patients on the burden of the disease. Such information will be used as part of the decision making process in regards to allowing new treatments to become available to Canadians with XLH.

If you are interested in helping our cause and connecting with other Canadians with XLH or their caregivers, we invite you to

join us on our private Facebook group!

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