XLH Stories

A Force To Be Reckoned With – Taryn's Story

For the first year of her life, Taryn Vasarhelyi’s rare diagnosis eluded her parents and doctors. Now a resilient and thriving 13-year-old, her success is a testament to the importance of increased awareness and early intervention. Please visit the article in Macleans (link here) for the full story.

Stepping forward

Sarah's Story

For years, Sarah Bernard struggled to manage the many challenges posed by X-linked hypophosphatemia (XLH). When her son, Elliot, was diagnosed with the same condition, she vowed to do whatever was necessary to make his experience easier than hers had been.

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