Picture taken by Cori Lynn Life Photography Finding Strength in Community: My Third XLH Day Experience For the last three years, I’ve had the absolute privilege of attending XLH Day, hosted by the XLH Network. Each year brings new faces, new knowledge, and new memories, but one thing remains constant — the sense of belonging …
The ASBMR Annual Meeting: Our Journey in Seattle When you step into a room filled with the brightest minds in bone, mineral, and musculoskeletal research, there’s an undeniable energy. The American Society for Bone and Mineral Research (ASBMR) Annual Meeting is not just another conference—it’s the largest and most diverse gathering in the field, …
A Life-Changing Summer: Our Family’s Journey to XLH Camp at the Center for Courageous Kids When people ask me what the most meaningful part of my work with the Canadian XLH Network has been, they often expect me to talk about the conferences I’ve attended across the globe, the brilliant medical professionals I’ve …
Tiffany Koewler is a 38 year old from Evansville, Indiana, USA. She is 4th generation with XLH in her family, diagnosed at the Shriners Children’s Hospital in St Louis MRU (Metabolic Research Unit) at 6 months old. At this time it was still known as Vitamin D Resistant Rickets. She was started on the K-Phos/Rocaltrol …
Samantha Nazareth was diagnosed with a spontaneous case of XLH at the age of two. From the time she began walking there was visible bowing in her legs, and although they didn’t reside in the UK she was referred to Great Ormond Street Hospital for Children in London, England where they officially diagnosed her. She …
Alice Van Vugt, is an 18-year-old from Kitchener, Ontario. With a love for animals, she’s been involved in 4-H clubs for the last 8 years. She enjoys showing animals and attends several fairs, including the Royal Winter Fair in Toronto and is currently preparing a lamb and beef calf for the Royal fair this fall. …
Josie Campbell is a 36-year-old from the small town of Watford, Ontario where she lives with her husband and their two boys Reid who’s 5.5 and Hayden who is 3.5 years old. She has served as the Secretary of the Canadian XLH Network since its beginnings. Josie is a proud teacher at St. Peter Canisius …
June Lather is a 63 year old from Crediton, Ontario, where she lives with her husband Brian. She’s a proud mother to her daughters Jasmine and Danielle (that’s me!), as well as an adoring “Memaw” to her grandsons Jayden, and Adrian. My Mom loves to spend her days gardening, exercising to her favourite rock music, …
Lynda Dumont, born in La Tuque, Quebec and was raised in a small northern Ontario community called Wawa. Lynda has two children of her own (both with XLH), three grandsons, one with XLH, and gained a stepson when she married her partner Carol Nisbet in 2017. Lynda works as a RECE (Registered Early Childhood Educator) …
Emmett Morgante is a twenty-one year old from Puslinch Ontario. In the fall of 2022 he will be entering his 5th year of his undergraduate program in Human Kinetics at the University of Guelph. His end goal is to become a professor researching biomechanics of bone diseases (ideally specialize in XLH). When Emmett’s not studying …