Emma Hendrikse is a twenty-one year old from the Greater Toronto Area, studying to be a teacher at the University of Toronto. She loves cats, lizards, fish, plants, and teaching kids between the ages of four and eight. When she’s not working as a tutor, she’s also a mentor with the Big Brother/Big Sister Canada …
The first time I remember feeling different from other kids in school, was when a classmate in third grade made the comment “You walk like a Penguin!” A few of the other kids giggled and from there my new nickname was Penguin. Thankfully I think Penguins are adorable and the teasing didn’t last long. I …
Whether you have XLH yourself, or are a caregiver for someone with XLH, you may find yourself attending various appointments, meeting new professionals, and having many things to remember. It can be overwhelming to say the least. Not only physically draining to be involved in such a busy schedule, the mental load of keeping track …
Fatigue is a common symptom for those with XLH. To various degrees, we lack stamina. XLH affects the mineralization of bones and proper muscle function throughout the body, resulting in both body and mental fatigue on a daily basis. Everyone has a different level of severity, but will inevitably struggle with fatigue on some level …
Did you know there have been many different names used in the medical and scientific community before its present iteration of X-Linked Hypophosphatemia? It has also been called : X-Linked Hypophosphatemic Rickets Familial Hypophosphatemia Familial Hypophosphatemic Rickets Vitamin D-Resistant Rickets (VDRR) Genetic Rickets This can be a barrier for people looking for peer support to …